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Personal information protection

Basic Basic Policy of Radiation Effects Research Foundation
Concerning Protection of Personal Information
The objectives of the Radiation Effects Research Foundation (RERF) shall be to conduct research and studies, for peaceful purposes, on the medical effects of radiation on man and on diseases which may be affected by radiation, with a view to contribution to the maintenance of the health and welfare of atomic bomb survivors and to the enhancement of the health of all mankind.
Results of RERF studies are now utilized worldwide for the purposes of radiation-related medicine and safety. We are grateful to the A-bomb survivors for their support and continue to make efforts to respect their human rights and strictly manage their personal information.
Scientific studies are beyond the scope of application on the protection of personal information (hereinafter referred to as the “Personal Information Protection Law”), but we prepared this basic policy in view of the developments thus far.
RERF intends to properly handle personal information in observance of the following items:
1. RERF, in handling personal information, pledges to comply with the Personal Information Protection Law.
2.

RERF, in conducting research and studies that are beyond the scope of application of the Personal Information Protection Law, pledges to comply with the ethical guidelines issued by the national government (hereinafter referred to as the “national ethical guidelines”), which include the Ethical Guidelines for Medical and Health Research Involving Human Subjects (Ministry of Education, Culture, Sports, Science and Technology/Ministry of Health, Labour and Welfare), and Ethical Guidelines for Human Genome/Gene Research (Ministry of Education, Culture, Sports, Science and Technology/Ministry of Health, Labour and Welfare/Ministry of Economy, Trade and Industry). In addition, RERF will strive to protect personal information by implementing the following steps:

 
(1) RERF, prior to conducting research and studies, will have the Institutional Review Board review research protocols concerned for compliance of the protocols with the national ethical guidelines, and will not initiate the research and studies concerned without approval from the committee.
(2) RERF, when obtaining personal information from individuals themselves, will inform the individuals of the purpose of use of the personal information in advance, except when cases are considered exceptions in accordance with laws and ordinances.
(3) RERF will not provide personal information to any third party without consent from the individuals from whom information was obtained, except when cases are considered exceptions in accordance with laws and ordinances.
(4) RERF, when outsourcing activities to other medical institutions, will choose reliable organizations and conclude work contracts with the other party to ensure proper handling of A-bomb survivors’ personal information.
(5) RERF will disclose personal information in its custody when requested by the individual from whom information was obtained.
3. RERF will strive to build institutional and information systems to ensure protection of personal information.
Effective October 11, 2005
Revised on July 27, 2016
Ohtsura Niwa
Chairman, Radiation Effects Research Foundation
For inquiries on the above basic policy, please contact:
Personal Information Protection Consultation Service, General Affairs Section
Phone: 082-261-3131 / Fax: 082-506-1531
Inquiry form